Memorable events
- Involvement from 56 countries
- Announcement of National Plans for Rare Diseases in several countries
- Recognition by the U.S. Senate
- More than 2000 on-line press clippings
- European Symposium Organised by EURORDIS with the support of DG SANCO (European Commission)
Friends of Rare Disease Day
A way for you or your organisation to share what you will do this year

Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaign
Join the Community
|
|
|
|
@GenzymeCorp @Geneticsupdate @bloodgoal @BrokenHearteded Thanks for the follow, want to be friends of #Raredisease Day? http://t.co/3E3roAje
Jan-27-2012 Read full tweet..
@timeswellness Nice article on #Raredisease Day in India. Hope you will be there to cover the events at the end of Feb. http://t.co/zruuwdy8
Jan-27-2012 Read full tweet..
@sandrabgo @collie1013 @PaulWorre @sicklecellUK Thanks for the and sharing information on being involved in #Raredisease Day!
Jan-27-2012 Read full tweet..
@IHaveIIH Thanks for spreading the word about #raredisease day! Have you shared a photo? http://t.co/3Bb94Rtg
Jan-27-2012 Read full tweet..
Change your FB or Twitter pic to the #Raredisease Day logo. Show your solidarity with patients worldwide http://t.co/j68Ylbl7
Jan-27-2012 Read full tweet..
Have you added your video to the growing #Raredisease day collection? http://t.co/GmctiYpM
Jan-26-2012 Read full tweet..
SOARING VOICES project asks you to create a video that informs, enlightens & uplifts for #Raredisease Day like this one http://t.co/4haIvK2C
Jan-26-2012 Read full tweet..
'Leap year: Rare day to highlight rare diseases' Scientific journal Nature writes about #RareDisease Day http://t.co/LXlD3Pwy
Jan-20-2012 Read full tweet..
@FDA_Drug_Info: Register for FDA Rare Disease Patient Advocacy Day. http://t.co/RiSXSPMm
Jan-19-2012 Read full tweet..
Now following @Asisttia @GRDO_IRELAND @HAEDAY @srfcure @GaucherMx @Helsedir @11pdeletion #raredisease
Jan-18-2012 Read full tweet..
There are now 73 "Friends of #RareDisease Day". A great way to lend your support to this year's campaign http://t.co/3E3roAje
Jan-13-2012 Read full tweet..
Video report from 2011 EU #raredisease day event in Brussels http://t.co/fORJ9hFB Details of this year's event on Feb 29 to follow soon
Jan-13-2012 Read full tweet..
@BaxterDahl @sallsynt Hi Henrik, Our partner in Norway is: The Norwegian Directorate of Health, Rehabilitation and Rare Disorders Department
Jan-13-2012 Read full tweet..
Feb 29 2012 is Rare Disease Day. “Rare but strong together”. A time for solidarity with people living with #raredisease http://t.co/jCHvYRAv
Jan-12-2012 Read full tweet..
March 4 in Spain: walk of hope for #raredisease Inscribirte en la III Carrera por la Esperanza de las ER @feder_ong http://t.co/Dug657pf
Jan-11-2012 Read full tweet..
@GallusEffie Tnx for bringing video on Lowe Syndrome to our attention. We've added it to our video gallery http://t.co/cqjAlAtM #raredisease
Jan-10-2012 Read full tweet..
2 inspirational stories shared today re living with #raredisease Friedreich's Ataxia. Vid: http://t.co/EPeLYjN1 Photo: http://t.co/TROibjt8
Jan-10-2012 Read full tweet..
Help spread the word about #raredisease day this Feb 29. Place a ribbon on your website or blog http://t.co/JH6LLlGw
Jan-10-2012 Read full tweet..
@tt_l_bar Hola Raquel! Y tambien le consejo@eurordis
Jan-06-2012 Read full tweet..
@rarediseasefdn: In Support of Canadian Rare Disease Plan and Orphan Drug Policy - Sign the Petition http://t.co/vM6rMlDv #rarediseases
Jan-06-2012 Read full tweet..
Rare Disease Day in the News
View photos
Sign up for updates
Fill in the form below and we will keep you up to date with regular updates on Rare Disease Day 2012








