Rare Disease Day is open to everyone!

Individuals, patients, patient organisations, health professionals, researchers, drug developers, public health authorities - the more, the better!

As you’ll find out, there’s more than one way of getting involved. Let’s join our efforts to give hope to rare disease patients all over the world!

1. National Alliance

Do you want to organise an awareness-raising activity?
Do it by contacting your national alliance or country organiser.
Contact your National Alliance

Not a patient organisation but you still want to organise an activity or simply help relay the message?
Sign up as a Friend of Rare Disease Day by adding your name to a growing list of supporters on the website.

Your country doesn't have a National Alliance or you are an international organisation?
You can still get involved by contacting EURORDIS at rarediseaseday@eurordis.org.

2. Download the Rare Disease Day logo and poster

We ask only that this logo be displayed in the spirit in which it was intended—as a non-commercial symbol of global partnership in the search for ways to improve the lives of those affected by rare diseases.

3. Other ways to get involved

You can also join the more than 10,000 fans who have already signed up on Facebook, or send in photos or videos (and commentary in your own language) on Flickr and YouTube.

Organise debates on topics of importance to rare disease patients with Decide tools.

Decide is a discussion based research method which promotes awareness and captures opinions on key issues affecting the rare disease community.

Thank you for joining in!

4. Ideas for supporting the campaign